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Scottish Cross Party Group Publication (Annual return / report)
Source Page: Cross-Party Group in the Scottish Parliament on Palliative Care
Document: Annual Return 2021 22 Palliative Care Cross Party Group (PDF)

Found: Annual Return 2021 22 Palliative Care Cross Party Group


Non-Departmental Publication (Statistics)
Office for Health Improvement and Disparities

Feb. 06 2024

Source Page: Palliative and end of life care factsheet: Patterns of care, England 2022
Document: Palliative and end of life care factsheet: Patterns of care, England 2022 (webpage)

Found: Palliative and end of life care factsheet: Patterns of care, England 2022


Bill
Access to Palliative Care Bill [HL] 2017-19

Private Members' Bill (Starting in the House of Lords)
Summary

A Bill to make provision for clinical commissioning groups to ensure that persons in their area have access to specialist and generalist palliative care and appropriate support services; and for connected purposes


Non-Departmental Publication (Statistics)
Office for Health Improvement and Disparities

Jan. 09 2024

Source Page: Palliative and end of life care profiles: January 2024 data update
Document: Palliative and end of life care profiles: January 2024 data update (webpage)

Found: Palliative and end of life care profiles: January 2024 data update


Scottish Government Publication (Minutes)
Chief Operating Officer, NHS Scotland Directorate

Jan. 29 2024

Source Page: Palliative and end of life care: Strategy Steering Group minutes - September 2023
Document: Palliative and end of life care: Strategy Steering Group minutes - September 2023 (webpage)

Found: Palliative and end of life care: Strategy Steering Group minutes - September 2023


Bill
Terminal Illness (Provision of Palliative Care and Support for Carers) Bill 2017-19
Presented by Bambos Charalambous (Labour)
Private Members' Bill (under the Ten Minute Rule)
Summary

The Bill failed to complete its passage through Parliament before the end of the session. This means the Bill will make no further progress. A Bill to require the provision of comprehensive palliative care to those with terminal illnesses, including adults over the age of 60; to require certain public bodies to co-operate with hospices in the provision of palliative care; to make provision for support for those caring for individuals with a terminal illness; and for connected purposes.


Written Question
Palliative Care
Thursday 25th April 2024

Asked by: Ellie Reeves (Labour - Lewisham West and Penge)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps her Department is taking to ensure that NHS integrated care boards commission (a) end-of-life and (b) other palliative care for people in all age groups.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

While the National Health Service has always been required to commission appropriate palliative and end of life care services to meet the reasonable needs of their population, in 2022, palliative care services were added to the list of services an integrated care board (ICB) must commission, promoting a more consistent national approach and supporting commissioners in prioritising palliative and end of life care in all settings. To support ICBs in this duty, NHS England has published statutory guidance and service specifications for both adults and children.

From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant, all age local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of both adults and children in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities.

NHS England has also funded seven Palliative and End of Life Care Strategic Clinical Networks, each with a dedicated Children and Young People Lead. These networks support commissioners in the delivery of outstanding clinical and personalised care for people in the last year of life and reduce local variation.


Written Question
Palliative Care
Friday 26th April 2024

Asked by: Rachael Maskell (Labour (Co-op) - York Central)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what discussions she has had with (a) clinicians, (b) hospice leaders and (c) academics on future funding requirements for hospice and end of life care.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

Integrated care boards (ICBs) are responsible for determining the level of locally available, National Health Service funded palliative and end of life care, including hospice care. ICBs are responsible for ensuring that the services they commission meet the needs of their local population.

The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.

In July 2022, NHS England published statutory guidance and service specifications for commissioners on palliative and end of life care, setting out the considerations for ICBs to meet their legal duties, and making clear reference to the importance of access to services.

The Department and NHS England, alongside key partners, will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, in order to understand the issues they face, including that of future funding pressures. The Department is in ongoing discussions with NHS England, including its National Clinical Director, about the oversight and accountability of National Health Service palliative and end of life care commissioning.

From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population.

NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities. Additionally, the National Institute for Health and Care Research has established a new Policy Research Unit to build an evidence base on palliative and end of life care, with a specific focus on inequalities.


Written Question
Palliative Care
Friday 26th April 2024

Asked by: Rachael Maskell (Labour (Co-op) - York Central)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will take steps to ensure that best practice in palliative and end of life care is shared across the NHS.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

The Government recognises that access to high-quality palliative and end of life care can make all the difference to individuals and their loved ones. NHS England meets regularly with regional and system leaders, providing a forum for the sharing of best practice. In addition, there is a palliative and end of life care workspace available on the FutureNHS Collaborative Platform, which includes a range of resources, case studies, and discussion fora, with access to the platform available for anyone with a NHS.net email account.

NHS England has developed a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, enabling integrated care boards (ICBs) to put plans in place to address and track the improvement of health inequalities, and ensure that funding is distributed fairly, based on prevalence.

As of April 2024, NHS England is including palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. These meetings will provide an additional mechanism for supporting ICBs to continue improving palliative and end of life care for their local population.

The Ambitions Framework, refreshed by the National Palliative and End of Life Care Partnership, which is made up of NHS England and 34 partner organisations with experience of, and responsibility for, end of life care, sets out the vision to improve end of life care through partnership and collaborative action between organisations at local level throughout England, by setting out six key ambitions.

Furthermore, the National Institute for Health and Care Excellence (NICE) has published guidance and quality standards on end of life care for adults, and children and young people. These are based on best practice in developing and delivering care and, while not statutory, there is an expectation that commissioners and service providers take the guidelines into account when making decisions about how to best meet the needs of their local communities.


Non-Departmental Publication (Statistics)
Office for Health Improvement and Disparities

Dec. 05 2023

Source Page: Palliative and end of life care profiles: December 2023 data update
Document: Palliative and end of life care profiles: December 2023 data update (webpage)

Found: Palliative and end of life care profiles: December 2023 data update